ALS Ice Bucket Challenge.
We can’t tell you how much it means to our lovely Dad, whose arms and back are now paralysed due to his ALS, that so many people are taking part in this challenge in order to raise awareness of ALS as well as funds for ALS research. Thank you for your help towards our Dad and others like him, past and present, to find a cure and prevention for ALS.
The ALS Ice Bucket Challenge is a fantastic way to bring this evil problem into the limelight. Let’s hope the publicity and the cash flow can help to get the ball rolling a bit faster in finding a cure for ALS.
We too have started to receive donations again as a result of the ALS Ice Bucket Challenge and it has given us hope that we may, after all, be able get the funds together for a booster of Stem Cells for Dad. Thank you everyone.
Dad went for a check up yesterday at the Medizinisches Labor Hannover – MLH and spoke to the TV channel NDR. As a result of this they filmed his check up and also did the ALS Ice Bucket Challenge with him:
Dad received his stem cell treatment on his birthday, November 21st, after our family’s fundraising initiatives and everyone’s kind contributions, did result in some initial improvements in his ability to use his hands and have a straighter posture, but unfortunately those improvements don’t seem to have continued. However, who knows how much his condition might have deteriorated had he not had the treatment? We think it was definitely worth a try and has added valuable information to the currently limited research there has been into the disease, which could affect any one of us in the future. We are continuing to raise funds in the hope of being able to afford a booster of stem cells for Dad to see if, now that the body has had the initial input, that makes a difference.
September 20th 2013
Get HAMPSHIRE published the following article:
Lifesaving support urged for campaign to ‘Save My Dad’
Accountant pleads for help to pay for stem cell treatment for her army veteran father
A Church Crookham accountant has launched an appeal to help save her father’s life.
Jenni Kenyon is helping to raise funds to pay for life-saving stem cell treatment for her father Ian White.
Mr White, 67, served in the army for 29 years and was enjoying retirement when he was diagnosed with amyotrophic lateral sclerosis (ALS) or Motor Neurone Disease.
The youngest of four sons, as a boy he was county champion in judo. He joined the army aged 16 and worked his way up through the ranks to become a captain in the Royal Electrical and Mechanical Engineers.
Mr White represented the army in various rugby and sailing competitions, including one where he raced from Bombay to Singapore.
He met his first wife while posted in Germany and went on to have two daughters, Jenni, aged 44, and Melanie, 40, and a son, Ian junior, who is 31.
“When dad left the army he settled in Germany and eventually remarried after his relationship with our mum broke down,” said Jenni, who was born in Aldershot and runs her own business in Crookham Village, JKAB Accountancy.
“Petra has been his rock now for more than 15 years and has given up work to do the job of caring for him full-time to help him cope with his physical impediments and his mental well being.”
Mr White, a keen karaoke singer, now has little or no use of his arms and hands.
“During our recent visit to Germany we also noticed how his head is now stooping forwards, due to the muscles in the back of his neck beginning to deteriorate.
“His hands and arms have become very swollen due to the fluid build-up because they hang down by his side all the time,” said Jenni.
“What is happening to our dad is a tragedy. He only just retired aged 65 in November 2010 and hoped this would be the start of an era that would incorporate many new adventures for him and Petra.
“However, just a month after his retirement, he first noticed the weakness in his arm muscle and now he cannot go anywhere independently, let alone ride his beloved motorbike or go off on any active adventures.”
But the family says there is hope and that with the right treatment there is a lot of light at the end of a very dark tunnel.
“Dad needs pioneering stem cell treatment in Israel and then Switzerland, which we are raising money for,” said Jenni.
“His condition has taken away the use of his arms and we hope to slow the progression of his illness and reverse some of the damage done.”
The family has organised a comedy night at the Red Lion Hotel in Basingstoke on Saturday from 7.30pm to raise funds for the treatment. They are also selling special T-shirts.
For more details visit www.savemydad.co.uk.
Dad now has little or no use of his arms and hands at all – first his left-arm and hand deteriorated (being left-handed this was very inconvenient) and then his right arm muscles began to deteriorate. During our recent visit to Germany we also noticed how his head is now stooping forwards, due to the muscles in the back of his neck beginning to deteriorate, and his hands and arms have become very swollen due to the fluid build-up because they hang down by his side all the time.
What is happening to our Dad is a tragedy – he only just retired at age 65 in November 2010 and hoped this would be the start of an era that would incorporate many new adventures for him and Petra. However, in December 2010 (just a month after his retirement) he first noticed the weakness in his arm muscle and now aged 67 he cannot go anywhere independently, let alone ride his beloved motorbike or go off on any active adventures. Petra now has to do everything he would normally have done to care for the house and garden they bought together just 4 years ago and spends all her time caring for Dad.
But there is hope and we know that with the right treatment there is a lot of light at the end of a very dark tunnel. Dad needs pioneering stem cell treatment in Israel and then Switzerland, which we are raising money for so please donate however you feel able: Buy a T-Shirt, come to our big comedy night or simple make a donation via our just giving page.
We would really like to offer Dad (and Petra) both as much help as possible and appeal to all of our friends and family for their support too.
Thank you and lots of love from Jenni, Mel, Ian and the rest of the family xxx